A YOUNG boy with a ultra-rare genetic condition that makes him look like an old man has defied doctors to celebrate his fifteenth birthday. Nihal Bitla, who lives in Bhiwandi on the outskirts of Mumbai, India, has Hutchinson-Gilford progeria syndrome (HGPS) – which ages his body eight times faster than normal. The condition leaves Nihal bald, with heavy wrinkles and severely weakened limbs.
The average life expectancy for children with progeria is 14, with many dying from a heart condition called arteriosclerosis, which usually affects adults over 60. But Nihal blew out the candles on his 15th birthday cake on January 20, 2016, making him the oldest living child diagnosed with progeria in India. VIA- Barcroft TV
That guy has now, sadly, passed away, at the age of 15, Nihal Bitla, the face of Progeria at grand parent’s place in Telangana on May 2. His death, from complications of the disease, was announced on his Facebook page run by the Boston-based Progeria Research Foundation.
Nihal suffered from a rare genetic disorder called progeria, where his body grew 8 times faster and manifested the various aspects of aging at a very young age..
The Facebook community page Team Nihal shared a message after knowing about his demise: “Nihal, your contagious smile, positive attitude, inspiring chats, optimistic outlook will give us strength for years to come. You have left us behind with heavy hearts for a higher place, Rest in peace our dear friend. Our thoughts and condolences with family and friends.” There is no known cure or treatment for Progeria.